PBC-40 – Quality of Life for Primary Biliary Cirrhosis

PBC-40 – Quality of Life for PBC Measure

if ($_POST) {
$a1 = $_POST[‘1’];
$a2 = $_POST[‘2’];
$a3 = $_POST[‘3’];
$a4 = $_POST[‘4’];
$a5 = $_POST[‘5’];
$a6 = $_POST[‘6’];
$a7 = $_POST[‘7’];
$a8 = $_POST[‘8’];
$a9 = $_POST[‘9′];
$a10 = $_POST[’10’];
$a11 = $_POST[’11’];
$a12 = $_POST[’12’];
$a13 = $_POST[’13’];
$a14 = $_POST[’14’];
$a15 = $_POST[’15’];
$a16 = $_POST[’16’];
$a17 = $_POST[’17’];
$a18 = $_POST[’18’];
$a19 = $_POST[’19’];
$a20 = $_POST[’20’];
$a21 = $_POST[’21’];
$a22 = $_POST[’22’];
$a23 = $_POST[’23’];
$a24 = $_POST[’24’];
$a25 = $_POST[’25’];
$a26 = $_POST[’26’];
$a27 = $_POST[’27’];
$a28 = $_POST[’28’];
$a29 = $_POST[’29’];
$a30 = $_POST[’30’];
$a31 = $_POST[’31’];
$a32 = $_POST[’32’];
$a33 = $_POST[’33’];
$a34 = $_POST[’34’];
$a35 = $_POST[’35’];
$a36 = $_POST[’36’];
$a37 = $_POST[’37’];
$a38 = $_POST[’38’];
$a39 = $_POST[’39’];
$a40 = $_POST[’40’];

$result = ($a1 + $a2 + $a3 + $a4 + $a5 + $a6 + $a7 + $a8 + $a9 + $a10 + $a11 + $a12 + $a13 + $a14 + $a15 + $a16 + $a17 + $a18 + $a19 + $a20 + $a21 + $a22 + $a23 + $a24 + $a25 + $a26 + $a27 + $a28 + $a29 + $a30 + $a31 + $a32 + $a33 + $a34 + $a35 + $a36 + $a37 + $a38 + $a39 + $a40);

echo $result;
echo “*”;

Over the last four weeks…

I was unable to eat what I liked (Symptoms) :
I ate or drank only a small amount, and still felt bloated (Symptoms):
I felt unwell when I drank alcohol (Symptoms):
I had discomfort in my right side (Symptoms) :
I had dry eyes (Symptoms) :
My mouth was very dry (Symptoms) :
I had aches in the long bones of my arms and legs (Symptoms) :
Itching disturbed my sleep (Itch) :
I scratched so much I made my skin raw (Itch) :
I felt embarrassed because of the itching (Itch) :
I had to force myself to get out of bed (Fatigue) :
I had to have a sleep during the day (Fatigue) :
Fatigue interfered with my daily routine (Fatigue) :
I felt worn out (Fatigue) :
I felt so tired, I had to force myself to do the things I needed to do (Fatigue) :
I felt so tired, I had to go to bed earlier than usual (Fatigue) :
Fatigue just suddenly hit me (Fatigue) :
PBC drained every ounce of energy out of me (Fatigue) :
Some days it took me a long time to do anything (Fatigue) :
If I was busy one day I needed at least another day to recover (Fatigue) :
I had to pace myself for day-to-day things (Fatigue) :
I had to make a lot of effort to remember things (Cognition) :
I had difficulty remembering things from one day to the next (Cognition) :
My concentration span was short because of PBC (Cognition) :
I had difficulty keeping up with conversations (Cognition) :
I found it difficult to concentrate on anything (Cognition) :
I found it difficult to remember what I wanted to do (Cognition) :
My sex life has been affected by having PBC (Social) :
I feel I neglect my family because of having PBC (Social) :
I feel guilty that I can’t do what I used to do because of having PBC (Social) :
I sometimes feel frustrated that I can’t go out and enjoy myself (Social) :
I tend to keep the fact that I have PBC to myself (Social) :
I can’t plan holidays because of having PBC (Social) :
My social life has almost stopped (Social) :
Everything in my life is affected by PBC (Social) :
PBC has reduced the quality of my life (Social) :
I can still lead a normal life, despite having PBC (Social) :
Because of PBC, I get more stressed about things than I used to (Emotional) :
Having PBC gets me down (Emotional) :
I worry about how my PBC will be in the future (Emotional) :

[pullquote]The PBC-40 is a disease specific health related quality of life measure for primary biliary cirrhosis.[/pullquote]

Formula :

40 questions, each scored on a scale of 1 to 5 (where 1 = least impact, 5 = greatest impact) grouped into six domains (symptoms, itch, fatigue, cognition, social, and emotional). For each domain, scoring involved summing individual question response scores.

Explanation of Result :

Higher scores indicate a poorer quality of life.

* Please verify all calculations prior to clinical use.