PBC-40 – Quality of Life for Primary Biliary Cirrhosis
PBC-40 – Quality of Life for PBC Measure
The PBC-40 is a disease specific health related quality of life measure for primary biliary cirrhosis.
Formula :
40 questions, each scored on a scale of 1 to 5 (where 1 = least impact, 5 = greatest impact) grouped into six domains (symptoms, itch, fatigue, cognition, social, and emotional). For each domain, scoring involved summing individual question response scores.
Explanation of Result :
Higher scores indicate a poorer quality of life.
* Please verify all calculations prior to clinical use.
References
Jacoby A1, Rannard A, Buck D, Bhala N, Newton JL, James OF, Jones DE. Development, validation, and evaluation of the PBC-40, a disease specific health related quality of life measure for primary biliary cirrhosis. Gut. 2005 Nov;54(11):1622-9. PMID: 15961522.
Study of health related quality of life (HRQOL) and the factors responsible for its impairment in primary biliary cirrhosis (PBC) has, to date, been limited. There is increasing need for a HRQOL questionnaire which is specific to PBC. The aim of this study was to develop, validate, and evaluate a patient based PBC specific HRQOL measure. Subjects and […]